Hello Nicholas Sparks,
This is my daughters story with CDH. I remember going for a routine
sonogram at 24 weeks. I remember laying there and feeling her go over
the same spot on my belly over and over. She then said I need to go get
my boss; I see something that isn't right. The other lady came in and
took a look herself. She then began to tell me what she saw and how it
wasn't right. They told me they would have to send me to see a
specialist in Dallas. A week later I went to see a doctor who
specializes in sick babies. She told me that my daughter Aubrey only had
about a 30-40% chance of making it. They told me that she had her
liver, spleen, stomach, small and large intestines all up in her chest
cavity. So every month I would go down to Dallas and they would tell me
each time things didn't look good but as long as she stayed in me she
was safe. At my last appointment they told me I would be induced in a
week. I had my daughter on February 25th.
She was intubated right away. They doctors where very impressed with
her because she only required a high-frequency oscillator. At four days
old they tired to change her to a regular ventilator and she did
wonderful. At six days old they did surgery to repair the whole, the
hole was so big the had to use a gor-tex patch to close the hole up. A
week later they took her off the ventilator and put her on oxygen. At
first she did good the they had to got up on the amount of pressure they
were giving her. A couple of days later she was down to almost room
air. So we worked of feeds and she did great! She then came off oxygen
too. A month later on March 25th
we got to take are baby home with no medical equipment. She is now
seven months old happy and healthy as could be! I'm writing and sharing
my store so that maybe one day we can find out with cdh happens to these
sweet babies, and better way to safe them!
Sincerely,
Sara Ysasi
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