Dear Mr. Sparks,
Mail delivery to our office is pretty exciting this time of year. Governors and mayors from around the country are sending us proclamations for Congenital Diaphragmatic Hernia Awareness on April 19th, thanks to the efforts of CDH families who are writing and requesting them.
This arrived over the weekend:
North Carolina Governor Pat McCrory has proclaimed April 19, 2015 "Congenital Diaphragmatic Hernia Action Day" in our state. Our governor is declaring that all citizens of our great state should take action to help these children on April 19th.
I think that's a good enough reason for you to help us raise awareness, isn't it? :) On top of the obvious reason that these babies need help and awareness.
NC is one of 11 states so far that has proclaimed April 19th for CDH Awareness. Soon, we will have resolutions on Capitol Hill to make April "Congenital Diaphragmatic Hernia Month" for the forth year.
Our Awareness Committee Leader, Felecia Woodruff, is posting updates daily over at http://www.cdhactionday.org to keep the community updated and show them to get involved. It takes a lot of people to make this day a success and we are so grateful for our volunteers, members and supporters who have a passion to help these children and take action.
Our voice is still small but we are growing louder and louder each year and someday soon, our cause will be heard. We invite you to help us not only speak, but to roar for these children.
Dawn M. Torrence Williamson
Determined CDH mom