Dear Mr. Sparks,
Henry Davis Williams was born 11-13-12 at 3:23am and passed just a few hours later.
The doctors cannot give us a concrete reason why Henry passed away. Oddly enough, the one health problem we knew Henry was suffering from, congenital diaphragmatic hernia, played no part in his passing. He had a good lung, and it was working hard. Henry had a severe case of metabolic acidosis and despite the doctors best efforts, it could not be cured. The doctors also feel Henry had Fryns syndrome, a very rare condition. Most babies with fryns pass away in utero. However, a few affected individuals have lived into childhood. Many of these children have had severe developmental delay and intellectual disability.
Henry was a very sick little boy. We feel very strongly that all of the love and support we received throughout our pregnancy fed Henry and kept him healthy and strong enough to not only reach full term but to also come out fighting. We are so thankful for the time we had with him, holding and loving on him. A memory we will cherish forever in our hearts.
Henry Davis Williams was born 11-13-12 at 3:23am and passed just a few hours later.
The doctors cannot give us a concrete reason why Henry passed away. Oddly enough, the one health problem we knew Henry was suffering from, congenital diaphragmatic hernia, played no part in his passing. He had a good lung, and it was working hard. Henry had a severe case of metabolic acidosis and despite the doctors best efforts, it could not be cured. The doctors also feel Henry had Fryns syndrome, a very rare condition. Most babies with fryns pass away in utero. However, a few affected individuals have lived into childhood. Many of these children have had severe developmental delay and intellectual disability.
Henry was a very sick little boy. We feel very strongly that all of the love and support we received throughout our pregnancy fed Henry and kept him healthy and strong enough to not only reach full term but to also come out fighting. We are so thankful for the time we had with him, holding and loving on him. A memory we will cherish forever in our hearts.
Written by Henry's mom, Carrie Williams
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