Monday, January 12, 2015

January 12 - Dear Nicholas Sparks

Dear Mr. Sparks,

Today I'm at the office juggling about a dozen projects.  This isn't very different from any other day but January begins the hectic season of preparing for April 19th, Congenital Diaphragmatic Hernia Action Day.   All of April is "Congenital Diaphragmatic Hernia Awareness Month" per the United States Senate and the House (we're still working on getting through all 3 branches... maybe this year!).

We do a lot raise awareness of CDH, especially during this month, and we work with many other CDH organizations worldwide

Last year, our families at CHERUBS convinced a majority of our governors to proclaim April 19th a "Day of Congenital Diaphragmatic Hernia Awareness", as well as dozens of mayors.   We had buildings light up including the Superdome and CN Tower and billboards in several cities.  Our incredible volunteers and members did all this with April 19th happening to fall on Easter weekend.  This year, we hope to do much, much more.

(click to see full size)

Credit for much of this goes to our Awareness Committee Leader, Felecia Woodruff (mom to CDH survivor, Bryson) and a team of very dedicated families who worked hard to rally the troops.   Felecia come on as leader in January of last year when the seat opened and nothing had been done (we start in months in advance usually).  Not only did she pick up all the slack left behind but excelled and led us to many, many achievements.   Already before January 1, 2015 we have several state proclamations ready to be announced and many other things planned.   The babies are counting on us to raise awareness and we won't let them down!

All of our committees have great leaders that are volunteer moms, dads, grandparents and survivors.   I will talk more about them tomorrow.  :)

Today, I would like to share some amazing photos from our events the past few years for April 19th.

 April 19, 2013 events

 2014 Events, Lightings, Proclamations and more:

We are very excited about CDH awareness, but especially this year being our 20th year.  With new projects (including this blog) planned, we hope this is the breakthrough year for these children.

Dawn M. Torrence Williamson
Determined Mom

1 comment:

  1. So proud that I can be associated with this amazing group to spread CDH awareness!