Dear Mr. Sparks,
Yesterday we posted a press release to help raise more CDH Awareness:
RALEIGH, N.C., Oct. 16. 2015 /PRNewswire/ -- After 10 months of writing letters to Nicholas Sparks, CHERUBS
- The Association of Congenital Diaphragmatic Hernia Research,
Awareness and Support, turns to the author seeking his help. They want
him to feature congenital diaphragmatic hernia (CDH) in one of his
upcoming novels.
CDH occurs in approximately 1 in
every 2,500 births (1,600 cases in the U.S. each year) and has a 50%
mortality rate. The cause of CDH is not yet known. CDH occurs when the
diaphragm fails to form or to close totally and an opening allows
abdominal organs into the chest cavity.
"Our CDH stories have heartache and sorrow, joy and hope, life and passing," says president and founder Dawn Williamson.
"We have the perfect opportunity to increase CDH awareness and a
guaranteed following of Mr. Sparks to insure the novel's success."
Only one thing is missing. Mr. Nicholas Sparks,
who is touring with his new romantic-thriller, "See Me," needs to agree
to include CDH in a book. So far, there is no indication whether or not
Mr. Sparks will accept the challenge.
"We have all the source material he would need," says the CHERUBS office manager Jason Miller. "There are literally thousands of both survivor and non-survivor stories from which Sparks can glean."
Williamson extends an invitation to Sparks for the upcoming CHERUBS Masquerading Angels Ball at TPC Wakefield Plantation in North Raleigh.
"A masquerade ball, singles mingling, pretty dresses- this has
everything the top romance writer needs to fuel a story," smiles
Williamson, who happens to be single herself. "Mr. Sparks is a very
handsome man. The dashing writer arriving at the masquerade ball to be
the date of the charity leader who wrote to him daily seeking his help
in memory of her son and to help other children would make a very
romantic storyline, wouldn't it?" teased Williamson.
Williamson has had the opportunity to meet Sparks twice so far, including at an event in Chapel Hill
this week. "I was able to talk to him about including CDH in one of
his future books. He didn't say yes. But he didn't say no. I know he
has a good heart for children because he has his own foundation. Many
of his characters do die in his novels so it's not far-fetched to ask
him to make the cause of death CDH to help us help these children. More
awareness equals more research funding for these babies. They need his
voice."
"The only mission at CHERUBS is to
help families affected by CDH by searching for the cause, prevention
and best treatments of Congenital Diaphragmatic through research and
awareness while supporting the CDH community. We focus on the whole CDH
community, not personal missions," says Miller.
Awareness is being raised. But our voice isn't loud enough. We need you.
Sincerely,
Dawn M. Torrence Williamson
CHERUBS President
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